Yesterday Brent and I went on a date for our 6th wedding anniversary. Its no big surprise that Brent and I rarely go out the two of us. We trust a super super small select group of people with watching Jilli. Its not like a normal two year old. There are a lot of different things that someone needs to know to take care of Jillian and it is not a quick explanation and a person has to prove to me that they can do it before I will leave her with someone. (We do qualify for respite care... we are just on a 7year wait list for our county before we will ever see respite care... great program.... not enough funding)
We also rather like spending time with our kid! I would rather have her around then not around! She is really well behaved in public and we don't have problems taking her to sit down restaurants with us (she sits and plays wile we eat) so for us it is not a big deal to take her with us everywhere. It feels odd to me to not have her around.
So for us going out it is a big deal.
We went to see Tomorrowland (our first movie out since she was born). Let me tell you... that is a great movie. I loved it! Brent really liked it. The story is good and my favorite thing is all the little Disney hints in there. I am a HUGE Disney history fan. This movie has a lot of little hints to Disney history that made me smile. Now you don't have to love Disney history to love the movie, Brent liked it and he puts up with my Disney history nerdness but he liked the movie without knowing the Disney history stuff. I would recommend that it is for kids about 8 and up. Not that there is really anything "bad" for kids younger then that I just don't see it holding their interest as well.
What I liked best was that it was a multidimensional movie, I could not tell you exactly how it was going to go from point a to point b, and part of that is because going in the previews don't give you much at a hint of a story line. I have also heard people worried that it is a si-fi movie, and it is not. I know it boast the title Tomorrowland but it has a lot less spaceage stuff then you would think. I would suggest seeing it.
After the movie we went to Olive Garden for dinner. It was yummy! I love tiramisu! Then we went back to be with our Jillian. It was nice though having adult conversation during dinner without a crayon in my hand.
I want to give a huge THANK YOU to everyone who helped to make this happen. To my parents for watching Jillian for us. To a comity at church that gave us the gift card for the movie and dinner, with a note telling us to enjoy some us time. Thank you so much. Brent and I were both holding back tears as we read the note and discovered what was inside. It touched us and made us smile. We are so thankful for your kind actions. It was the PERFECT gift to us at the PERFECT time. Thank you!
ps: a few people have been asking about Jillian's sleep study results. I got an email with the blood work results from her test (they wake her up my pricking her finger to get a blood gas) and some of the numbers were off but I will not know what that means until I hear from someone. They told us it would be at least a week from the time of the test until we hear anything so the earliest we will hear anything would be tomorrow but probably more likely it will still be a few days. Hopeful it is soon though! As always, prayers for good communications between us and her medical team are always appreciated!
She also did really start walking like normal today. It slowly improved over the weekend and now she is walking more like herself again.

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