Brown and Pink Polka Dots : Notes to the Doctor

I love that Children's uses an electronic chart system called "mychart" that you can keep track of almost everything on. It shows Jillian's growth chart, has the reports from all of her doctor and hospital stays, lists all of her medications and test results and it allows us to message Jillian's doctors.

This week Jillian's butt is being kicked from the immunization that she got last week. Here are copies of the messages I have sent to the doctor's office this week:

Wednesday's message:
I am writing to update you on Jillian's week after being seen in the ER this weekend.

Sunday: Jillian continued to be lethargic off and on most of the day. We continued to do neb treatments every 4 hours and started the steroids.

Monday: Monday morning she was very lethargic and did not do anything most of the morning but sit. She woke up with a cough again but it was less like a bark then on Sunday. I took her for a follow up with her ped and she said her lungs sounded ok at that point. She was a little more like herself for at the doctors office and for a short time after. We continued to do nebs every 4-5 hours. She took a nap from 1:40-4:20 which is odd for my little girl who normally naps around an hour. She woke up at 11pm coughing and vomiting. We ended up doing a neb early to help her to stop coughing.

Tuesday: She woke up really lethargic again. She only went to day care for 3 hours and spent and hour of if sitting in a chair because she was exhausted. She calmly played the rest of her time there. She took a 3 hour nap in the afternoon. She spent most of the evening resting on the couch. She would get up and play for 10-15min and then she would lay or sit and do nothing for 40 minutes or more. There was a noticeable wheeze as the day went on. We did nebs ever 4 hours

Wednesday: She woke up a little bit happier today however her cough is much more frequent. It is not as barkey however does not sound productive either. She is really struggling to keep from vomiting mucus and even putting toys in her mouth is making her gag. She is doing nebs every 4 hours and starts coughing more and more the farther she gets from taking a neb.

Please let me know if you have any questions. Thank you!

This morning's message:
Wednesday night into Thursday morning, Jillian was up many times during the night crying. We are really not sure why. It was a pain cry however we could not figure out what was bothering her. Her GI system was running really slow yesterday causing her tube to be hard to flush but that got a little better as the day went on. This may have been the cause for the pain. She continued to cough a lot yesterday. It is still a very unproductive cough. We did nebs every 4 hours. She took another long nap yesterday and spend most of the afternoon/evening sitting.

Last night was long. I was up with her until 3am coughing. We did a neb with her at 8:30pm and then put her to bed. When I went up to bed at 10pm she was coughing a little. She continued to cough more and more until she got her neb at 12:30am. She continued to cough frequently until about 3am. It was a really unproductive cough. Thankfully she was able to sleep through most of it and was just really restless but was not up crying.

This morning her eyes are very glossy and her nose is running and she is sneezing some. She has not done much this morning other then sit on the couch to look at books. Last night she got her last dose of predisone.

Currently her largest struggle with this is the cough and how tired she is. We get very short bursts of energy and then she spends most of the rest of the day sitting or laying. While Jillian has low muscle tone in her legs that causes her to sit more then most 22month olds and to get tired much more easily, this is significantly more then normal.
I do not hear a wheeze this morning however there still is some retracting going on and she is still partially stomach breathing.
I am thankful that the cough is not still like the barking she had on Sunday. This just takes so much out of her body and you can tell she is exhausted.

I have not heard back from either message yet so I am hopeful that I will hear something soon. She is in that gray zone that I hate. She is not well (or herself) however there is not a ton we can do right now.