Friday, September 13, 2013

I big, I crawl now!

Wednesday night Jillian moved into the world of crawling. She had been able to reach for things and slowly move for a while but now she can crawl up on all fours and make good time. At first she crawled to daddy and her monkey. Them she turned around and crawled to the PS3 and turned in on. Today we got a shield so she can't do that anymore... We also got some other baby proofing things that we figured out we needed... Like covers to sprip plugs since we have multiple in rather open areas in the house. 
She moving around the living room and getting at all she can. We have been putting her little backpack on her so she can crawl without a leash. She looks so big with a backpack on and is so proud of herself. We were out today and someone asked if she was on he way to school next. We said her feeding pump was in it. They acted all apologetic but we explained that it was fine to ask about and we were happy to share info. We even shared some of Julian's story. 
Tonight she also decided to start choking... On what you might ask... Had to have been something that came up. She had been sitting on Brent's lap and had not put anything in her mouth at that time. She had been screaming 15min before and that causes saliva and such to drain into her tummy then causing her to reflux it then causing her to choke. We try to sometimes let her cry out her problems but it is hard when stuff like this happens. She did that choke breath in and then held her breath for several seconds as we called her name and put her pointing downwards to no responce from her. She was motionless. After a while she sputtered a few times and took a good breath in. Sometimes when I worry if jilli is "that bad" that we need to be doing all of this and then she goes and chokes on nothing but herself and I'm convinced all over again. Times like that are scary but luckily they have always been short lived. 
Yesterday I left a message for GI seeing if they got the gastric emptying study back and if they had gotten the note from the head of IR about the button situation. They called back while I was at work and left a message saying that her gastric emptying study came back as increased gastric emptying not delayed. WHAT?!?!? I had a hard time not using choice words at my phone. How in the?what in the? What does that mean? I spent a while last night researching. There is not a lot of info about it for Jillian's age because it most commonly occurs in people who have had gastric bypass that has gone badly. This kid keeps throwing us for loops! As I told someone last night, with all the crazy test results she keeps getting I almost feel like why run tests. I'm trying not to be frustrated by this.
 Today we went and visited my favorite doctor. (If you have allergies or weird stuff like me go see this guy!) he said I overall look good. I have a sinus infection (which I could have bet money on). I guess your nose is not to leak green for over 3 weeks and have sinus pressure so bad your teeth hurt, and eyes that itch so bad you feel like you need to put on mitts on your hands. He just shook his head at me. Brent went and picked up my antibiotic tonight. I really dislike those things. Once you get Cdiff once you do your best to not get it again.  
Here is her trying to smile but refluxing 15min after eating. She was trying so hard to be happy, her tummy just was working with her. She could hardly stay still from trying so hard to keep it down. 

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