We have come to the giving time of year and one of the main things I want to use my platform for (doesn't matter if one person or a lot more read this... if someone listens to you, you have a platform and therefor a responsibility) is education. I told someone this year that my life circumstances are such where the needs of children with disabilities is a very high priority to me. Because of the shoes I am in, I am able to see needs and organizations that impact families with children who have medical needs.
Giving Tuesday is coming up so I wanted to highlight some amazing organizations:
-Ronald McDonald House: I lost track a long time ago how many nights we spent there this year however I found out recently that in the last two years we have spent around 100 nights at rmh! RMH means a lot to our family.
To quote a speech I gave about RMH a few weeks ago "To us Ronald McDonald House is a lot more then just walls and beds. I have to brag about the staff for a moment. Anywhere can have walls and beds, what makes this house special is the people inside of it. As a mom it touches my heart so much to see how the staff loves my girls. From singings silly songs with them, to dance parties in the great room, to including them in everyday things, the way the staff treats my children is incredible. When Jillian grows up she wants to work at Ronald McDonald House on Saturdays. This summer the managers at the house made her a sign that said little manager and let her help with little tasks. Jillian tells everyone about being a little manager"
Things you can do to help RMH
- Donate toys >$10 unwrapped to the house for the magic room
- Donate food
- Butter (stick and tub)
- individually packaged snacks
- kids cereal
- easy to prepare meal kits
- individual oatmeal packets
- Copy paper
- New stuffed animals
- Board Books
- White clothes hangers
- Coffee (k cups and ground bags)
-Gracie's Gowns: While we love astronauts in space ships (provided hospital gowns) there is something special about having your own gown that have something you love on it. We have received two gowns from amazing friends who have made Jillian gowns, so we do not have a Gracie's Gown however we understand how wonderful your own hospital gown is.
-Make a Wish: We are currently waiting for Jillian's wish to be granted... and we also know several friends who have either had a wish granted or are currently waiting for a wish. Wishes are expensive and take a lot of money to fulfill.
-Give Kids the World: About half of all wishes that are granted from wish giving organizations are to go to Disney World. When a child wishes to go to Disney World they stay at Gives Kids the World. This is an amazing place! To find out more watch this video: https://www.youtube.com/watch?v=ftjNDN34fqM
-Sing Me a Story: This year Jillian was able to have a story that she wrote turned into a song! She loves her song and it means so much to her. This is an amazing organization using the power of music to help children. To hear Jilli's story and to learn more about this organization: https://singmeastory.org/stories/thunder-and-the-rainstorm?song=920
-Team Up with Families: This is a great Wisconsin organization that helps families in the community with many different things. They run a lending closet for medical supplies that we have used many times. We also were able to attend their pool party this summer which was great to connect with other families!
-Feeding Tube Awareness: This site provided so much help and support for us in our early days of tube feeding. They help families adjust to life with a feeding tube and they work with providers to educate what life is like outside of the hospital with a feeding tube.
Not everyone can do everything... but everyone can do something...
There are a lot of organizations above and all of them help children with medical needs... which one do you feel most compelled to help?